Duchenne

Welcome

Christi Cazin is author of the Motherhood book, Living on Coffee and Prayer.

She’s also proud to be a regular contributor for DuchenneXchange

It’s very near to her heart to write about her journey as a Duchenne mom. If you’re interested in learning more about her families diagnosis story or journey as a Duchenne parent keep reading.

guest posts

Diagnosed with Duchenne

I remember the day I became a mother like it was yesterday. I remember vividly how it felt to hold my precious newborn for the first time. I remember the tiny fingers and tiny toes. I can almost smell that heavenly newborn skin aroma when I think about it. Oh, how I love that smell. I love being a mom. It’s not my only role, but it’s by far my favorite. The day I became a mother...

Dear Newly Diagnosed Duchenne Mom

“Be strong,” people keep telling you, but they don’t know how it feels to hear the doctor confirm the diagnosis you feared most. They don’t know that his words keep haunting you like a song you can’t get out of your head. Duchenne Muscular Dystrophy you keep hearing over and over again. They don’t understand the trauma that takes place inside a mother’s heart when she hears that her child has a degenerative disease. They don’t, but I do.

The World of Duchenne

I live in two worlds. One is the world we all live in. Everyone is familiar with how to navigate this world. There are endless maps, books, and guides to help people find their way around. Support is freely available to anyone trying to learn how to thrive here. I still live in this world, but it’s no longer my home. My new home is a far more difficult place to live in...

Teaching My Kids about Duchenne

No parent should ever have to tell their child they have a degenerative disease. There is no parenting book in the world that will prepare a mother to tell her two sons they have Muscular Dystrophy. How do you tell your six and eight-year-old sons that their lives will never be the same again? There is just no possible way to prepare your heart for such a task, but after I got that dreaded call that’s exactly what I had to do...