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Tag: disease

The Weight of the World

The Weight of the World

Posted on June 4, 2020June 4, 2020 by mamaneedsmorecoffee

Some days I feel strong and brave. Some days I feel a sense of accomplishment with each checkmark I make on my endless to do list. I move from one task to another with motivation. I feel honored to be a mother, a wife, a writer and a homeschool mom. I wouldn’t trade my role Read More

Posted in Faith, Lifestyle Tagged anxiety, Beauty, depression, disease, Duchenne, faith, god, life, pain, sorrow 4 Comments

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coffeelovnmama

Mom, wife, author, blogger, homeschool mom & coffee obsessed Jesus follower. #momblogger #author #homeschoolmom #momlife

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I’ve learned that a grateful heart does not equa I’ve learned that a grateful heart does not equate to a constant grateful mood. I always have a heart full of love, gratitude, and appreciation – even on the bad days. When my son stopped walking, I felt such sorrow for him, but I also felt grateful that he didn’t have to worry about falling anymore. I felt compassion, admiration and a kind of love for him that grows with every breathe I take. Along our journey, I’ve realized that all of the hard moments eventually end up leading to beautiful ones. Read my latest #duchenne @theduchennexchange link in bio
A wise person once said, “In the end, it’s not A wise person once said, “In the end, it’s not the years in your life that count. It’s the life in your years.” I can’t guarantee my life won’t include pain, sorrow, and heartache, but I know for sure that it will include wonderful memories. I know, without a doubt, it will be full of endless amounts of love, laughter, and joy. I know that our years will be completely, beautifully, memorably, and utterly full of life. Read my latest #duchenne #duchennexchange (link in bio or below) https://www.duchennexchange.org/blog/the-life-in-your-years/
Happy 5th birthday to my beautiful, feisty, sarcas Happy 5th birthday to my beautiful, feisty, sarcastic, thoughtful, intelligent, hilarious and incredibly sweet little girl. You are my sunshine Addie girl! We love you. ❤
Sneak peak from our family photo shoot. Sneak peak from our family photo shoot.
At that moment, I was once again blinded by that i At that moment, I was once again blinded by that incredible light inside of him. It shines through his laugh, his selflessness, his kindness, and the way he loves others with every piece of his heart. It’s rare that someone so young can make you want to be a better person, but that’s what he does. Read my latest on the @duchennexchange #duchenne #dmdmom #cureduchenne https://www.duchennexchange.org/blog/this-little-light-of-mine/ Link in bio as well.
Happy Halloween Happy Halloween
God gave me the most amazing kids. Every day that God gave me the most amazing kids. Every day that goes by I thank him for the moments, the memories and the fierce love that surrounds me. 
#brothers #cureduchenne #dmdmom #faithoverfear
Two weeks ago, on what felt like an ordinary day, Two weeks ago, on what felt like an ordinary day, my ten-year-old son took his last steps. We had no idea that day would be one of those “lasts.” The day before he walked to the bathroom, he walked into the kitchen, and he was able to stand by himself. I didn’t know that the next day when I’d attempt to lift him to a standing position, he would buckle in my arms, unable to bear weight on his legs. Just like that, he couldn’t walk anymore. Read my latest for the @duchennexchange #duchenne https://www.duchennexchange.org/blog/the-last-steps/ Link in bio as well.
We all remember that day. Sometimes the very thoug We all remember that day. Sometimes the very thought of it can bring us to our knees in agony. Other days it simply acts as the line of demarcation, dividing our old life from our new one. Diagnosis Day is a day we never forget because what follows is a completely different way of life. Read my latest on the @theduchennexchange #duchenne #duchennexchange #diagnosisday (Link in bio) https://www.duchennexchange.org/blog/diagnosis-day/
My children inspire me on a daily basis. They make My children inspire me on a daily basis. They make me want to be a better person. They inspire me with their words, their actions, and their amazing ability to fight a disease like Duchenne with such grace. I work hard every day to serve them with love, humility, and compassion. I want my children to feel loved unconditionally. I never want them to feel like their needs are a burden to me. I strive to have a servant’s heart. Read my latest @theduchennexchange #duchenne #servantsheart (Link in bio) https://www.duchennexchange.org/blog/a-servants-heart/
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